Thein Aung has been trained not to show weakness, but he's convinced no
soldier is strong enough for this.
He clenches his jaw and pauses, trying to will his chin to stop
quivering and his eyes not to blink. But he's like a mountain that is
crumbling. His shoulders shake, then collapse inward, and he suddenly seems
small in the denim Wrangler shirt that's rolled up to his elbows and hanging
loosely off his skinny arms. Big tears drip from his reddened eyes, and he
looks away, ashamed. As he sits outside a crowded clinic on the outskirts of
Myanmar's biggest city, he knows his body is struggling to fight HIV,
tuberculosis and diabetes — but he can't help wishing he was sicker.
Although Aung is ill enough to qualify for HIV treatment in other poor
countries, there's simply not enough pills to go around in Myanmar. Only the
sickest of the sick are lucky enough to go home with a supply of lifesaving
medicine here. The others soon learn their fate is ultimately decided by the
number of infection-fighting cells found inside the blood samples they give
every three months. The World Health Organization recommends treatment start
when this all-important CD4 count drops to 350. In Myanmar, it must fall below
150.
Antiretroviral therapy, in the past considered a miracle only available
to HIV patients in the West, is no longer scarce in many of the poorest parts
of the world. Pills are cheaper and easier to access, and HIV is not the same
killer that once left thousands of orphaned children in sub-Saharan Africa. But
Myanmar, otherwise known as Burma, remains a special case. Kept in the dark for
so many decades by its reclusive ruling junta, this country of 60 million did
not reap the same international aid as other needy nations. Heavy economic
sanctions levied by countries such as the United States, along with virtually
nonexistent government health funding, left an empty hole for medicine and
services.
Today, Myanmar ranks among the world's hardest places to get HIV care,
and health experts warn it will take years to prop up a broken health system
hobbled by decades of neglect. "Burma is like the work that I did in
Africa in the'90s. It's 15, 20 years out of date," says Dr. Chris Beyrer,
an HIV expert at Johns Hopkins University who has worked in Myanmar for years.
"If you actually tried to treat AIDS, you'd have to say that everybody with
every other condition is going to die unless there are more resources." Of
the estimated 240,000 people living with HIV, half are going without treatment.
And some 18,000 people die from the disease every year, according to UNAIDS.
The problem worsened last year after the Global Fund to Fight AIDS,
Tuberculosis and Malaria canceled a round of funding due to a lack of
international donations. The money was expected to provide HIV drugs for 46,500
people. But as Myanmar wows the world with its reforms, the U.S. and other
nations are easing sanctions. The Global Fund recently urged Myanmar to apply
for more assistance that would make up the shortfall and open the door for HIV
drugs to reach more than 75 percent of those in need by the end of 2015. It
would also fight tuberculosis, a major killer of HIV patients. TB in Myanmar is
at nearly triple the global rate as multi-drug resistant forms of the disease
surge.
The aid group Doctors Without Borders has tried to take up the slack by
providing more than half the HIV drugs being distributed. But every day,
physicians at its 23 clinics must make agonizing decisions to turn away
patients like Aung, who are desperately ill but still do not qualify for
medicine because their CD4 counts are too high.
"It's very difficult to see those kind of situations," says
Kyaw Naing Htun, a young doctor with a K-pop hairstyle and seemingly endless
energy, who manages the organization's busy clinic in Insein. He says about 100
patients who should be on drugs are turned away every month in Yangon alone.
"It takes a lot more resources when they come back sicker. It's a
lose-lose game."
Aung first learned about the virus living inside him in April. He had
dropped weight and wasn't sleeping well, but figured it was the TB and diabetes
running him down. When the test came back positive for HIV, he was shocked and
scared: How? Why? "I wanted to commit suicide when I found out the results,"
he says softly, looking away. "What upset me most was my wife. She says I
shouldn't die now because we have children." The questions swarmed and
consumed him, followed by a flood of worry and guilt that he had possibly
infected his spouse. Then the bigger concern: What's next?
Unlike many living in a country closed off to the world for the past
half century of military rule, Aung, an Army staff sergeant, had some firsthand
knowledge about HIV. He had watched the disease rot one soldier from the inside
out, punishing him with a cruel death. But he also saw another get on treatment
and live a normal life, despite the military kicking him out. With the images
of those two men locked in his head, Aung decided to fight to save himself and
ultimately his family. No one but his wife could know, or he would lose his job
and their home on the military base because of the deep fear and discrimination
surrounding the disease. Drugs were his only chance to keep the secret. "If
I get the medicine, and I can stay in this life longer, I will serve the
country more and my family will not be broken," he says. "My family
is invaluable."
At the clinic in Insein, an area of Yangon better known for a notorious
prison, Aung, who is using another name to protect his identity, waited
nervously for the results of his first blood test. CD4 count: 460. Low enough
for drugs in the U.S., but well above the 150 cutoff in Myanmar. He was given
TB meds and told to come back in three months. Many of the 200 people crammed
into the two small buildings of an HIV center just outside Yangon are simply
waiting to die.
Beloved opposition leader Aung San Suu Kyi visited patients there in
November 2010, just days after being freed from house arrest, appealing to the
world for more medicine. She also spoke passionately in July about the stigma
of HIV via a video link to the International AIDS conference in Washington,
saying, "Our people need to understand what HIV really is. We need to
understand this is not something that we need to be afraid of."
There are no doctors or nurses stationed at the hospice supported by Suu
Kyi's National League for Democracy party, forcing patients to care for each
other. One man hangs a drip bag on a plastic string from the ceiling over an
emaciated body. Other caregivers — many of whom are also infected — wave paper
fans beside their loved ones for hours, providing the only relief they can
offer. Infected children whose parents have already passed away play barefoot
in the stuffy, crowded rooms. Bodies, some nothing more than breathing corpses,
are stacked side by side on bamboo slats above dirt floors.
Another room is packed with 20 women stretched out on straw mats
crisscrossing the wooden floor. A young mother sobs in one corner as she
breast-feeds a 7-day-old baby girl. She did not take HIV drugs until late in
her pregnancy, and now must wait up to 18 months to know for sure whether her
only child is infected. "The funding is limited for the enormous number of
patients," says newly elected parliament member Phyu Phyu Thin, who
founded the center in 2002 and was jailed by the former government for her HIV
work. "Waiting to get the medicine under the limits is too risky for many
patients because they can only get it when their health is deteriorating."
Aung looks the part of a soldier with his shaved head and wiry build. He
spent the first decade of his 27 years in the military fighting in domestic
ethnic wars, away from his wife and two children. It's this past life that
devours him each night when sleep refuses to come. He served as a medic then,
and regularly came into contact with the blood of wounded soldiers. He also had
sex with other women. The question that haunts him most is, which one is to
blame? He'll never know. He takes sleeping pills every night to be released
from these thoughts. But relief does not come, as chills and night sweats
drench his body and the constant urge to urinate keeps him running to the
toilet.
He's lost 10 pounds in the past month, dropping from 130 pounds to 120.
His cheeks are starting to sink, and his eyes look hollow. His strength is also
fading, and he can no longer lead grueling daily runs with the trainees. He
uses his TB as an excuse, but he fears his superiors will not be fooled much
longer. "I try to hide it as much as I can, but some people have started
rumors about me, so I try not to face them directly," he says. "I
want to be strong like the other people. I'm trying, but now my body cannot
follow my mind." His wife refuses to be tested until Aung gets on the
drugs. She worries that if she comes back positive, her guilt-ravaged husband
will kill himself. "She doesn't want me to be depressed," he says.
"If she is positive, I will be very, very depressed."
The disease has forced him to rethink who he is. He's killed people in
combat, cheated on his wife and witnessed many horrors in his lifetime. But he
wants a chance to make up for his wrongs. As a Buddhist, he believes his
disease is a punishment for misdeeds in a previous life. He vows to be a better
man by helping others and giving what little he has to charity. He says sicker
patients deserve treatment first. Still, as he sits waiting for his second
blood test, he can't help wishing his immune system was weak enough to help him
reach the magic number.
But when the doctor reads his results, he knows he will leave
empty-handed again. CD4 count: 289. Still too high. His only choice is to try
again in three months, hoping he'll be sick enough then.
ABC News
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